Wael Tarabishi’s family had hoped his father and primary caretaker could be present as they say their final goodbyes to the 30-year-old at his funeral on Thursday.

But Immigration and Customs Enforcement officials denied the family’s request to temporarily release his father, Maher Tarabishi, for the service in Joshua, Texas, the family’s attorney said in a statement.

Now the family is preparing to bury Wael, who died last Friday, after spending his life suffering from a serious and rare inherited disorder called Pompe disease that leads to severe muscle weakness and heart problems, without Maher.

“We are profoundly disappointed with ICE’s decision to deny Maher Tarabishi the opportunity to say his final goodbye to his beloved son, Wael,” Attorney Ali Elhorr said in a statement Tuesday. “Today’s decision to keep him from saying goodbye is a reflection of the tragic lack of humanity by those in charge.”

In a separate statement, family members said preventing Maher from burying his son “would only deepen the wounds left by the pain of these past few months.”

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